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News coverage, interviews and podcast appearances featuring the Ontario Rare Action Group and the community we advocate for.
TV
Once again we see patients and families suffering due to inequitable access to therapies.
Global News
Article
Stronger together: Advocates pushing for rare disease strategy
Village Report
Article
Rare voices, real change: Community-based advocacy efforts driving big impact
Patient Voice
Article
New group launches to advocate for rare disease patients in Ontario
BradfordToday
Article
New group launches to advocate for rare disease patients in Ontario
BarrieToday
Article
Column: Local woman continues fight for access to rare disease treatment
BradfordToday
Article
She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say
Global News
Article
Ontario family forced to fight for life-saving drug highlights need for national rare disease strategy
CTV News
Article
Vanstones go to Queen's Park to advocate for rare disease strategy
NewmarketToday
Article
Rare Community Profiles: How Beth and Madison Advocated for Public Funding for the First Cystic Fibrosis (CF) Modulator in Canada
Patient Worthy
TV
The reality of living with Wilson Disease
Your Morning
Podcast
Episode 4: The Hidden Disease: Navigating Life with Wilson Disease
Impact Gap Podcast · Spotify