A Canadian caregiver. A global leader. A relentless advocate for the sickle cell community.
Since 2017, Biba has served as President of the Sickle Cell Disease Association of Canada (SCDAC), driving landmark progress - from challenging outdated blood donation policies rooted in malaria deferrals to advancing national policy change.
Her leadership helped shape Bill S-201, a historic step toward establishing a national framework for sickle cell disease in Canada. The Bill has passed the Senate and is now before the House of Commons - a critical moment for patients and families across the country.
But Biba’s advocacy is not abstract.
It is deeply personal.
As a caregiver to her adult son living with sickle cell disease, she understands the daily realities - the unpredictability, the gaps in care, the impact on families, and the urgent need for coordinated, equitable systems of support.
This is why her voice is so critical in the conversation around a national rare disease strategy and workforce readiness.
Because without a clear framework, patients are left navigating fragmented care.
Without trained providers, outcomes suffer.
Without urgency, inequities persist.
Biba also serves as CEO of the Global Alliance of Sickle Cell Disease Organizations (GASCDO), working across more than 30 countries to advance patient-centered policy and equity in care worldwide.
Her mission remains clear:
To ensure that no patient is left behind in Canada - or anywhere in the world.